BEGIN:VCALENDAR VERSION:2.0 PRODID:-//ĢƵ//NONSGML v1.0//EN NAME:PhD defence R.W. Wong Chung METHOD:PUBLISH BEGIN:VEVENT DTSTART:20250922T154500 DTEND:20250922T171500 DTSTAMP:20250922T154500 UID:2025/phd-defence-r-w-wong-chun@8F96275E-9F55-4B3F-A143-836282E12573 CREATED:20250904T003340 LOCATION:(1st floor) Auditorium, Main building De Boelelaan 1105 1081 HV Amsterdam SUMMARY:PhD defence R.W. Wong Chung X-ALT-DESC;FMTTYPE=text/html:

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One, two, three, toward s autonomy?!

Most parents want not “self” but “ together”: Research shows what parents and professionals consider i mportant in the care of children with a chronic condition

If we support parents of children with a chronic condition more effectively in organizing care, this could contribute to greater well -being, less stress in families, and a more sustainable healthcare sy stem. This is shown by research from pediatric physiotherapist and ed ucationalist Ruud Wong Chung. Together with parents and child healthc are professionals, he developed practical tools to improve collaborat ion and empower parents for more autonomy— as it belongs.

In his study, Wong Chung looked at the experiences, views, and needs of both parents and healthcare professionals regarding self-manageme nt — in other words, how parents themselves (or together with professionals) organize the care for their child. He explored whether self-management is self-evident, or whether it requires more coordin ation and support.

Not “self” but “together”-ma nagement

Both parents and professionals see self-manag ement as important, but often define it differently. Many parents exp erience the term self-management as one-sided; they prefer t o speak of together-management, where they are supported and coached by involved professionals. Especially during stressful perio ds, parents need extra support. They want to be taken seriously, to b e trusted, and to be able to communicate openly.

Professionals, in turn, do want to support parents, but sometimes struggle to find the right balance between being in control and letting go. They also emphasize that good communication and mutual trust are essential, but admit that they sometimes lack the skills to truly coach parents eff ectively.

What is needed?

According to W ong Chung, healthcare professionals must learn to better align with t he unique situation of each parent — which also changes over time. This requires:

To support professionals in this, Wong Chung developed two practical tools:

  1. The S-scan - Parental self-management Support
    A self-reflection too l that allows professionals to examine their own vision, attitude, an d behavior regarding support for parental self-management.
  2. An interactive media platform
    A digital tool that facilitates communication between parents and professionals, for exa mple through videos or photos of daily care situations.

< strong>Why supporting parents matters

Parents caring f or a child with a chronic condition experience a major impact on thei r family life. As a society, it is essential that we support these pa rents in their role, so they can take ownership themselves. This requ ires close collaboration with healthcare professionals who have the a ppropriate tools and skills. Wong Chung’s research provides valuabl e guidance to achieve this.

More information on the thesis< /a>

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Most parents want not “self” but “toget her”: Research shows what parents and professionals consider import ant in the care of children with a chronic condition

If we support parents of children with a chronic condition more effecti vely in organizing care, this could contribute to greater well-being, less stress in families, and a more sustainable healthcare system. T his is shown by research from pediatric physiotherapist and education alist Ruud Wong Chung. Together with parents and child healthcare pro fessionals, he developed practical tools to improve collaboration and empower parents for more autonomy— as it belongs. In his study, Wo ng Chung looked at the experiences, views, and needs of both parents and healthcare professionals regarding self-management — i n other words, how parents themselves (or together with professionals ) organize the care for their child. He explored whether self-managem ent is self-evident, or whether it requires more coordination and sup port. Not “self” but “together”-management B oth parents and professionals see self-management as important, but o ften define it differently. Many parents experience the term self -management as one-sided; they prefer to speak of together-m anagement, where they are supported and coached by involved prof essionals. Especially during stressful periods, parents need extra su pport. They want to be taken seriously, to be trusted, and to be able to communicate openly. Professionals, in turn, do want to support pa rents, but sometimes struggle to find the right balance between being in control and letting go. They also emphasize that good communicati on and mutual trust are essential, but admit that they sometimes lack the skills to truly coach parents effectively. What is neede d? According to Wong Chung, healthcare professionals must le arn to better align with the unique situation of each parent — whic h also changes over time. This requires: To support profes sionals in this, Wong Chung developed two practical tools:
  1. The S-scan - Parental self-management Support
    A s elf-reflection tool that allows professionals to examine their own vi sion, attitude, and behavior regarding support for parental self-mana gement.
  2. An interactive media platform
    A digital tool that facilitates communication between parents and prof essionals, for example through videos or photos of daily care situati ons.
Why supporting parents matters Parent s caring for a child with a chronic condition experience a major impa ct on their family life. As a society, it is essential that we suppor t these parents in their role, so they can take ownership themselves. This requires close collaboration with healthcare professionals who have the appropriate tools and skills. Wong Chung’s research provid es valuable guidance to achieve this. More information on the One, two, three, towards autonomy?! END:VEVENT END:VCALENDAR